It was day 2 and while most of D.C. weathered a hot June day, we sat in our new digs--an isolation room in the NICU. Because Eleanora's outlook was dire, the NICU staff moved us into this room so our family could have privacy. This was a gracious act--one of the most meaningful during our hospital stay. We could watch the sunrise and sunset now--share it with Eleanora and even know (relatively) what time of day it was. We sat all day, every day with her. Often waking at 3:30 a.m. and going to bed at 1 a.m. Not knowing whether she'd survive another day was terrifying (and it continues to be). Will today be the last day we'll hold her? Will this be the last outfit she'll wear? Alas. We try to live in the moment and take advantage of every minute we have with her.
No comments:
Post a Comment