This first week home was stressful--would Eleanora continue to live, could we support her needs without the medical team that made her life possible? Each day was marked with new understandings of Eleanora's needs and desires. For example, Eleanora does not want to sleep alone or in a crib (who can blame her?). Yet, we were concerned with co-sleeping given our exhaustion. And so, as the days continued on Greg and I learned how to accommodate her wishes. Giving her the highest quality of life was, and continues to be, our utmost priority.
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